Michelle Greer, RN, MBA on Side Effects of IG Therapy: How to Prevent and...
Mary, thank you for your question. Meningitis is inflammation of the lining of the brain. There are several causes. Aseptic is considered drug-induced and is not contagious. Viral meningitis is caused...
View ArticleMary on Side Effects of IG Therapy: How to Prevent and Manage Them
What is the difference between Aseptic Meningitis and Viral Meningitis?Does either one cause brain damage, neurological damage, changes in personality and memory? Is either one contagious? If so what...
View ArticleMary on Side Effects of IG Therapy: How to Prevent and Manage Them
What happens when a patient can't take the premedications of antihistamines, NSAIDS and steroids both before and after an infusion due to sever disabling dizziness which prevents them from walking and...
View ArticleRachel on Side Effects of IG Therapy: How to Prevent and Manage Them
Gatorade or Powerade work better than just water for preventing my migraines. This was suggested by an infusion nurse.Ibuprofen seems helpful, but you recommend Tylenol. Any difference?When switching...
View ArticleAn on Side Effects of IG Therapy: How to Prevent and Manage Them
Thank you all for sharing your experiences and treatment tips that have really helped to improve my quality of life while I adjust to a PID diagnosis.
View ArticleCindi Berry RN, IgCN, Michelle Greer, RN, MBA on Side Effects of IG Therapy:...
Ethel, we totally understand your concerns about trying out these new therapies. There are a lot of things to consider when you have any form of neuropathy. First of all, neuropathies have many causes,...
View ArticleEthel Liivngston on Side Effects of IG Therapy: How to Prevent and Manage Them
I FAILED TO MENTION THAT ALL 3 OF MY SONS DIED OF AIDS AND I TOOK CARE OF THEM.
View ArticleEthel Liivngston on Side Effects of IG Therapy: How to Prevent and Manage Them
I have been on IVIG since 2006, I weigh 150 and receive 20 grams every week along with 40 mg methyprednisone. My treatment started with 5 consecutive days and the reduced to every 3 weeks. By the last...
View Articledebbie on Side Effects of IG Therapy: How to Prevent and Manage Them
Awesome!!! I am so impressed you have good support for this blog. I feel very supported. Great advice. I have done all the things you say for dermatomyositis (and a number of other auto immune...
View ArticleCindi Berry, RN, IgCN and MIchelle Greer RN,MBA on Side Effects of IG...
Hi Ethel, How long have you been on IVIG? How much do you weigh and what is your weekly dose? IVIG is dosed by weight and usually people with CIDP start with 2 gm/kg broken up into a few days each...
View ArticleCindi Berry, RN, IgCN and MIchelle Greer RN,MBA on Side Effects of IG...
Hi Debbie, it sounds like you still have some side effects but also it sounds like you feel it might not even be helping you. What condition do you have that IVIG is treating? Depending on your...
View ArticleCindi Berry, RN, IgCN and MIchelle Greer RN,MBA on Side Effects of IG...
Hi Steve, All IVIG products contain a black box warning that there is a potential for renal failure. This was due to one product years ago which contained sucrose. Years ago, all IVIG products were...
View ArticleCindi Berry, RN, IgCN and MIchelle Greer RN,MBA on Side Effects of IG...
Hi Laura, the literature talks about certain conditions which have a higher potential to affect the central nervous system, and unfortunately immunodeficiency is one of them, resulting in meningitis....
View ArticleEthel on Side Effects of IG Therapy: How to Prevent and Manage Them
I receive IVIG every week. I receive Tylenol and other medications to reduce any side effects that may occur. I have no side effects. My problem is I don't think that the IVIG is controlling the CIDP....
View ArticleLaura on Side Effects of IG Therapy: How to Prevent and Manage Them
Debbie - it is so... well, I don't know if *heartening* is the word I would use for a partner in misery... but, it makes me feel less a freak knowing someone else out there has experienced the same...
View Articledebbie on Side Effects of IG Therapy: How to Prevent and Manage Them
Hi Laura, I can totally understand. I can give you my experiences in alleviating the aseptic meningitis. I slowed the rate, I take acetaminophen before as well as a antihistamine. I have looked at the...
View ArticleSteve on Side Effects of IG Therapy: How to Prevent and Manage Them
I would appreciate knowing what one can do when kidney function appears to be affected with this drug? I have no side effects whatsoever that I am aware of, stay hydrated, receive saline at the same...
View ArticleLaura on Side Effects of IG Therapy: How to Prevent and Manage Them
Unfortunately, I experienced aseptic meningitis with two different IgG replacement therapies - including a switch-up from IVIG to SCIG - three times within six months.My question is: Now what? It seems...
View Articledebbie on Side Effects of IG Therapy: How to Prevent and Manage Them
Thank you so much for discussing this topic. As someone who has worked to try to alleviate side effects from IVIG it was important to review methods to mitigate side effects. Looking at medications...
View ArticleMichhelle Greer, RN, MBA on Side Effects of IG Therapy: How to Prevent and...
CVID is typically diagnosed later in life, not because it’s missed since childhood, but because as the immune system develops that is when the defects manifest. There is a delay in diagnosis and that...
View ArticleMary on Side Effects of IG Therapy: How to Prevent and Manage Them
Greetings,Your trying to find out the incident rate of genetically passing on an immune disorder.Something that I have not seen any blog address is if the person(s) being testing can emotionally...
View ArticleAn on Side Effects of IG Therapy: How to Prevent and Manage Them
Thank you all for sharing your experiences and knowledge, which really helps newbies like me! Research on PID seems sparse and other than my immunologist, the doctors I have seen report having had...
View ArticleAbbie Cornett on Side Effects of IG Therapy: How to Prevent and Manage Them
Hello Elizabeth, excessive sweating can be caused by a number of different medical conditions but is not a reported side effect of IVIG treatment. If you need anything else please contact me at...
View Articledebbie on Side Effects of IG Therapy: How to Prevent and Manage Them
Hi Elizabeth, I also get diarrhea, and I would describe them more like hot flashes. I always liken it to the IVIG "cleaning" out all the "bad" things left behind and turning on or off hormones to help...
View ArticleElizabeth Robertson on Side Effects of IG Therapy: How to Prevent and Manage...
I wonder if there are side effects not mentioned in the above article?I have had IVIG for low antibodies, following cancer treatment, for the last eight months. Last month, after the infusion, I had 24...
View ArticleNatalie on Side Effects of IG Therapy: How to Prevent and Manage Them
Thank you for this article and most excellent posts. For many years I've searched for anyone with similar symptoms to mind by found none. I'm treated with IVIG every 8 weeks for viral syndrome which...
View ArticleMary Ann on Side Effects of IG Therapy: How to Prevent and Manage Them
*swelling and redness ~ sorry!
View ArticleMary Ann on Side Effects of IG Therapy: How to Prevent and Manage Them
Laura ~ I did IVIG for one year with only one "meningitis headache" ~ I premeditated with a medicine for glaucoma patients (to reduce pressure before and after IVIG dose) ~ then I switched to...
View ArticleGeorge Dursa on Side Effects of IG Therapy: How to Prevent and Manage Them
Is Ivig Gammagard free of the HIV virus? Is it safe?
View ArticleKathleen A Buschatz on Side Effects of IG Therapy: How to Prevent and Manage...
I have CIDP and have been getting IVIG for a little over a year of treatment. We've changed the IVIG med, added Prednisone 10mg the day before tx, days (2)of tx and the day after. We've also added...
View ArticleJames on Side Effects of IG Therapy: How to Prevent and Manage Them
Hello my moms had cidp for about 12 years now she is 66 years old. When she first started getting symptoms it came as back pain, then the tingling in the feet and hands. She tried to ivig, plasma, and...
View ArticleBrian Crook on Side Effects of IG Therapy: How to Prevent and Manage Them
Ethel, I am sorry you have dealt with such loss. I was diagnosed with CIDP and I'm 52. If your situation has not changed you can email me at bkc2063@bellsouth.net.
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